This Wednesday (treatment day) came WAY too fast. We just got home and settled in on Saturday and now we are heading back to the clinic for chemo and to the urologist for a follow-up. Jacob is usually in denial on Wednesdays. It's not like he's excited to go.
Thankfully Jacob has some level of understanding. My friend that I met in the hospital who was there with her three year old also goes to the clinic on Wednesdays. Her little boy will say, "no chemo." He knows which room he has to go to be pinned down to access his port. He screams every week, even though he says it doesn't hurt. He doesn't like it. He clings to his older sister for comfort who can't be much older that 5 years old herself.
When you look around a packed infusion room (the room at the clinic where they dispense chemo treatments), it's unbelievable that so many children and so many families are living this life.
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2 comments:
I'm so sorry that you are having to wade through this living nightmare. As rough as it is to live with autism and the various mental illnesses, I can't begin to imagine what you are going through. Good luck, dear friend. Know that you are not alone. Your post sounded pretty down. You are loved and the angels surrond you aching and wishing they could help carry your load. At the end of the journey, we will hear, "Well done, my good and faithful servant." And, we will understand all. I know I just slaughtered the quotation, but my brain isn't running well due to the many nights I'm up with the small ones. Take care, Jen.
Love, Bonnie
I don't think I would like Wednesdays either. I hope this week goes better than last. Sure love you
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