People always ask what they can do for us. We do appreciate your prayers and service in our behalf. We'd also like to ask you to leave comments on the blog or directly in our email sometimes. Just a little note so that we know that you've been here and know what's going on. For Jon & I it is these little reassurances that we are not in this alone that mean the world.

Wednesday, September 17, 2008

Make-a-Wish

Jon talked with Dr. Matthias more today about Jacob's nighttime drama. He has always been a wild sleeper, but the thrashing and grinding of teeth has been bumped up. We attribute this to the emotional trauma that Jacob is trying to work out in his sleep. He wakes up in the night - sometimes because of regression to bed wetting (he's too tired to get himself up until he's wet & freezing). He is also acting frightened. He comes to sleep on our bedroom floor routinely - sometimes he tries to crawl into bed with us. It's risky sleeping next to this boy because he kicks. Sometimes he sleep walks to other spots in the house. I found him sleeping on the landing between the stairs recently. Anyway, they talked about the possibility of going to Cancer Camp. Jacob needs a chance to get out and do something more normal and more fun.

Later at the hospital the social worker was sent to Jacob's room to discuss the possibilities of making a wish. He kind of lit up at some of the possibilities. I thought that wishes were for when you reached the end of treatment or when you reached the end of the journey, but I guess wishes are granted at different times. When it came right down to it, when asked what he'd wish for Jacob said, "I wish I didn't have cancer."

I asked Jon if they were able to do THAT wish. Because it's what I wish too.

3 comments:

Laneea said...

Cancer camp? What, when and where would he go? Sounds like it could be fun. Jacob probably would love to feel more normal. I too, would wish for not having cancer. Sure do love you Jacob.

Adri said...

This breaks my heart. We are wishing for Jacob's health, too.

Deanna Holdsworth said...

that would be my wish too....