Too much. Too fast. "I kind of wish the doctors, technicians, and medical staff weren't being so accommadating to us." We could sense the urgency, the seriousness.
Jon asked, "Is this really happening?" But since we are going to have to take this one step at a time, I said, "Today it's just a tumor." Today we don't worry about cancer or chemotherapy or losing our precious son. Today he has a tumor that needs to come out. So we'll schedule surgery and do the lab work.
Today I will glance at my husband and in his embrace tears will drain down both of our faces. Today I know that nobody else in this world loves my Jacob as much as my Jon.
Tonight we will close our day on our knees. Why did it have to be my turn to pray? (I pray on all the odd days). I've never sobbed a more heartfelt prayer. I was able to say everything. I just poured it all out on the family room floor.
Unbelievable.
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6 month post chemo - clear scans
five days before his tumor was found
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Photography by Sara Westbrook
Jacob's Tenth Birthday
Jacob's Ninth Birthday
6 month post chemo - clear scans
Jacob's Eighth Birthday
five days before his tumor was found
Jacob's Story
Jacob was diagnosed with Embryonal Rhabdomyosarcoma (ERMS) Stage 1 in July 2008. His tumor was completely removed with clear margins. He had a port surgically placed in his left chest where he receives received all of his medicines and where blood is drawn. He has been following finished a 24 week treatment protocol of chemotherapy in January. He returned to 3rd Grade at his Elementary School in March 2009. He will see his oncologist monthly until his surgery is scheduled to remove his port-a-cath. We want him to swim all summer (needs to take a two week break for surgery site to heal), so we will wait until school starts again. He has follow up scans (ie. CT & chest x-rays) every 3 months.
Jacob's port was removed October 2009. This eliminated the need for a monthly flush of his port at the oncology clinic. He now goes in every year for a check up and blood work.
Contributors
Clinic Tour
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How Do I Learn More about Rhabdomyosarcoma??
Photography by Sara Westbrook
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