Yesterday Jacob asked, "Do I go the the clinic this week?" I said, "no. Next week." Then he grinned from ear to ear.
He has been writing me love notes. One of them I had to read with a mirror because he can write backwards. He also made an advent calendar of sorts. It's a countdown to Mom's b-day (I must admit when I first saw it at a glance I thought it said - countdown to Mom's baby. WHAT?!). Anyway, he's been keeping track so we don't forget that I turn 36 on Thursday. I think he just want us to remember to serve cake.
Another special thing Jake made for me is a treasure hunt. You can see the whole thing HERE.
We are also finalizing our plans for Jacob's baptism. We are very excited to see our family and have them share this special event.
I keep taking pictures and taking notes in my head, but it's been hard to keep up the blogs. I still would like to share Jacob's illustrated story of his cancer experience.
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6 month post chemo - clear scans
five days before his tumor was found
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Photography by Sara Westbrook
Jacob's Tenth Birthday
Jacob's Ninth Birthday
6 month post chemo - clear scans
Jacob's Eighth Birthday
five days before his tumor was found
Jacob's Story
Jacob was diagnosed with Embryonal Rhabdomyosarcoma (ERMS) Stage 1 in July 2008. His tumor was completely removed with clear margins. He had a port surgically placed in his left chest where he receives received all of his medicines and where blood is drawn. He has been following finished a 24 week treatment protocol of chemotherapy in January. He returned to 3rd Grade at his Elementary School in March 2009. He will see his oncologist monthly until his surgery is scheduled to remove his port-a-cath. We want him to swim all summer (needs to take a two week break for surgery site to heal), so we will wait until school starts again. He has follow up scans (ie. CT & chest x-rays) every 3 months.
Jacob's port was removed October 2009. This eliminated the need for a monthly flush of his port at the oncology clinic. He now goes in every year for a check up and blood work.
Contributors
Clinic Tour
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How Do I Learn More about Rhabdomyosarcoma??
Photography by Sara Westbrook
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