Tuesday Jacob met with Liz. They played games and read a book about emotions.
Wednesday Jacob went to the clinic. Dr. Mathias checked him out. He has been in good spirits. His body seems more energized. His blood counts have been consistently good. We do notice some neuropathy creeping into his feet. He can't flex real well. Hard to say if his recent stumbles have been because of flip flops that flip too much, the vincristine, or the fact that his feet have grown to a size 7 1/2 mens shoe (that's up a size and a half from this past summer). He still tends to compensate in his hands by flexing his wrists and not using his thumbs. His eyes still open quite wide - although I've seen the left one try to droop off and on.
This week was a Vincristine only dose. Jacob still struggles when his port is accessed. It's the anxiety more than anything. He has developed triggers just by seeing the syringes or smelling the alcohol wipes. The smells really gross him out. But he did it and was glad to buy some Skittles when it was over.
Thursday he returned to the gym for physical therapy. He started last Thursday. He's one of the few kids that I have seen there - certainly the only bald little boy. The staff all go out of their way to play with him and introduce themselves to him. They definitely make it seem like play and not work. Jacob is especially found of the bowl of candies on the front counter. Justin loaded up his bag last week and apparently Jacob loaded down his pockets on his own this week.
We didn't make it to the school to take his AR tests. We'll have to try again another day.
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I was thinking about Jacob yesterday when I was at the dentist getting a molar prepped for a new crown. Truly the greatest pain of this experience was the co-pay, but I still get a little nervous and squeamish about the shots and the drill. As I sat there waiting for the second round of Novacaine to take effect (the first one wasn't enough!), I thought, here I am, a grown up feeling a little nervous and uncomfortable about a little pain and intrusion. How does Jacob cope with all the many, many invasions and discomforts of his therapy? And at his age? I marvel at his bravery and courage. Please let him know we are proud of him for that!
Love, Steve
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