I had to sign two forms to receive a certified letter from Oncology Clinical Research from the hospital Jacob was treated. We enrolled him in their study which allows them to use his results to access their treatment protocol and modify it for future patients. As unsettling as it is treating cancer is NOT an exact science and it does NOT behave predictably or fairly. Anyway, it rattled me a minute. Partly because I thought I was going to be summoned by the court since I missed my recent jury assignment even though I requested an excuse (which they ignored).
"To: Patients/Parents of Patiens on ARST0331"
The letter didn't actually apply to Jacob's group since he was stage 1 group 1 and it was informing us that the stage 3 groups 1&2 needed to be on higher doses of cyclophosphamide. Their attempts to lower this terrible drug filled with side effects were not maintaining the same cure rates as children who had survived more doses of the Cytoxan.
Jacob only had 4 doses of Cytoxan. It is nasty, nasty stuff.
People always ask what they can do for us. We do appreciate your prayers and service in our behalf. We'd also like to ask you to leave comments on the blog or directly in our email sometimes. Just a little note so that we know that you've been here and know what's going on. For Jon & I it is these little reassurances that we are not in this alone that mean the world.
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